health data
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Health & digital rights organisations and trade unions to the Council of the EU: Uphold patients’ fundamental rights in the EHDS!
The Council of the EU must uphold European patients’ fundamental rights and agree on a right to ‘opt-out’ of the use of patient medical records in the final negotiations on the European Health Data Space (EHDS).
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Guarding health data privacy in Europe: The limits and challenges of current regulations
The GDPR demonstrates the capacity of the European Union to prioritise data protection and privacy. The collection and use of health data by private corporations makes privacy protections critically important. Taken together, the provided policy recommendations here create comprehensive steps forward.
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Stories reveal profound flaws in the “e-Evidence Regulation”
The Regulation on cross border access to data by law enforcement (so-called “e-Evidence” Regulation) threatens to put the rights of journalists, lawyers, doctors, social workers and individuals in general at great risk. EDRi and 13 civil rights organisations have just launched four scenarios that clearly depict how our future could enfold if the Regulation is approved.
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How a company illegally exploited the data of 14 million mothers and babies
If you’re in the UK you may know Bounty by the packs of samples they distribute to pregnant women at midwife apps. You might not know that they were also found to have illegally shared data of +14 million mums and babies with 39 companies. Bounty collected personal data from a variety of channels both online and offline: its website, mobile app.
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The slippery slope of COVID health passports
There is increasing talk of measures that allow or restrict passengers at the departure gate based on health data. Can you show proof of vaccination? Then you may pass. Do you have a recent, negative test result? Then you may enter. Are you unable or unwilling to show these? Then you are denied access. There’s an understandable rationale that underpins these scenarios: we want to create a safe environment. Yet it is also cause for great concern.
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Control of sorts over personal data for UK healthcare patients
NHS Digital, the provider of data and IT systems for the National Health Service (NHS) in the United Kingdom, has announced plans to roll out a new system by March 2018 as part of the national data opt-out. This is intended to allow patients to choose whether or not their personal identifiable data is used […]
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#4 Freedom not to be manipulated: How to fight weapons of math destruction*
This is the fourth blogpost of our series dedicated to privacy, security and freedoms. In the next weeks, we will explain how your freedoms are under threat, and what you can do to fight back.
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